Not
Worlds Apart
Uzbek Visitors See Similarities Between their Disability
Newspaper
and Access Press
by Laurie Eckblad Anderson
On June 11, three visitors from
Uzbekistan visited Access Press to learn about the role of a disability
newspaper in the U.S. They were guests of the Minnesota International
Center’s International
Visitor Leadership Program, and Access Press was just one of their many stops
while in Minnesota. Hosted that afternoon by Access Press editor Tim Benjamin,
the group had a lively exchange via the visitors’ Russian interpreters.
All the Uzbekistanis had connections to their disability community. Two of
them had a special interest in Access Press because they publish disability
newspapers of their own.
We Want to Talk about Ourselves
Benjamin met with Larisa Khodjaeva,
Oibek Isakov, and Guli Abaskhanova. Khodjaeva took the lead, asking
about key details related to publishing Access Press. She wanted to
know everything from its circulation (11,000) to the cost of a subscription
($25). She also noted that due to her interest in publishing, this
meeting with Access Press was a key stop for her on the group’s
overall itinerary.
Khodjaeva then shared
some more background on herself. She is affiliated with the Research
Center for Disabled Children in Tashkent and is the chief editor
of We Want to Talk about Ourselves, a glossy, colorful newspaper
published on behalf of children and teens with disabilities (pictured).
When Benjamin noted that it would cost a lot more to print Access
Press in a similar manner, Khodjaeva said they do it because that
makes their paper more attractive to its target group: kids. The
paper’s circulation is about 1,000.
Upon viewing a sample
of Khodjaeva’s paper, Benjamin was interested
to see articles published in both Russian and English. When asked what
disabilities are common in Uzbekistan, she responded that it is a mix
of physical and mental disabilities, and that diabetes is a huge problem
in her country. In fact, among the interesting list of sponsors for
Khodjaeva’s paper are two companies that produce insulin: Novo
Nordisk and Lilly. Novo is doing research on the prevalence of diabetes
in Uzbekistan; Lilly is providing funds for a camp for kids with
disabilities related to diabetes.
Even with financial backing from sponsors, Khodjaeva and Benjamin
agreed that it is always a struggle to find enough money for their
papers. And since both are always interested in a good story, they
agreed to provide each other with articles via an e-mail exchange.
Dignity
Soon Oibek Isakov took
over the questioning. He is the chair of the Disabled People’s
Society of Uzbekistan and is also affiliated with a disability newspaper.
The English translation of the name of his paper is Dignity. It publishes
3,000 copies twice a month, and its yearly budget is about $10,000
(U.S.); this is about the same cost as printing one month of Access
Press.
The Dignity is printed in black and white to save money. The relatively
high cost of a subscription is a serious problem. The average pension
for a person with a disability in Uzbekistan is 300,000 som (Uzbekistani
currency) per year; a subscription to Dignity costs 10,000 som per
year (3.3 % of annual income)! In comparison, Access Press is 10 times
more affordable for a person on a fixed income in Minnesota; the SSI
annual payment is $7476 ($623 monthly), and a subscription to Access
Press costs $25 (0.33 % of annual income).
Isakov’s paper is
of a social and political nature, dealing with issues important to
people with disabilities. However, the paper also includes articles
on general criminal activity, because that is what draws readers
in. Among those the paper hopes to attract with these crime teasers
are people without disabilities; Isakov believes that the able-bodied
fear disability, forgetting that it can happen to anyone.
Dignity welcomes submissions
from people with disabilities, who are paid if their articles are
used. In general, Isakov believes that people with disabilities should
participate in society as full citizens and accept the accompanying
responsibility. A colleague of his in Uzbekistan says an “invalid” is not one whose body doesn’t function,
but one who doesn’t use what he or she has.
The two papers are remarkably
similar. Like Access Press, the goal of Dignity is to improve the understanding
of disability in the greater society. Each paper is produced by a small
staff, including a person with a disability as editor-in-chief. Each
paper is a nonprofit and started up in the 90s; Access Press in 1990
and Dignity in 1998. Both papers will pay for articles, but Access
Press pays a lump sum per article while Dignity pays by the letter.
By and For People with Disabilities
Even when the interview was
technically over, the sharing of information did not stop. Between
meetings, two of the Uzbekistanis had questions about how Benjamin’s disability
had occurred; however, they questioned me instead of him—even
though I told them he would not be offended by their questions.
Instead, I told Benjamin about their interest and he addressed
the subject in front of the whole group. While discussing it later,
I said it was interesting that people who worked with people with
disabilities would worry about openly discussing this topic. Benjamin,
on the other hand, was surprised that it even mattered to them;
he thought the more important point is how we live with our disabilities.
Beyond that, I was able
to connect Khodjaeva with a Russian speaker on staff at the International
Diabetes Center at Park Nicollet. She was pleased to make that connection
for the future. Everyone got a tour of the Access Press office and
a look at the layout of the next paper. However, the highlight seemed
to be Benjamin’s computer
and head-mouse, a pointing device which he uses in place of a hand-operated
mouse. Although their harried driver was impatiently waiting to take
them to their next stop, the group stalled him until they learned
more about this technology that they had never seen before. ![]()
