Editor's Column
by
Tim Benjamin
It’s been a month of
questions about disability and death. Pope John Paul II’s disability
and death was a contrast to Terri Schiavo’s just a few days
earlier. He accepted his disabilities and dying in keeping with words
he wrote: "Medicine must always be at the service of life.” In
a 2004 speech, he went on to say, “When treatment cannot overcome
a serious disease, then efforts should be directed to the alleviation
of suffering. In every case it is important to remember the inalienable
dignity of every human being, even in the extreme conditions of terminal
illness. Euthanasia can be motivated by sentiments of compassion,
or by a false idea of preserving dignity. But instead of relieving
suffering it just eliminates the person.” That is a lesson
Hollywood needs to learn.
Terri Schiavo’s death scared people, and what scared them
most was that feeding tube. If you’re on a tube, they kept
saying—just like Hollywood’s movies lately—you
can’t really be alive. They don’t have the slightest
idea how tubes are our friends. Whether they’re implanted
under our skin, or inserted into our bodies, made of metal and
working as canes or crutches, we depend on tubes. Tubes mean we
can get on with life.
The circumstances of
Terri Schiavo’s death gave us all a chance
to re-evaluate the need for a living will or advanced medical directive.
Under what circumstances do we want our lives to end? It’s
a difficult thing to think about, let alone sit down and write
about, but we need to inform others of our wishes. We could never
predict all the possible scenarios. But just thinking about the
questions makes for the best reason to take the time to fill out
a health care directive.
Read what Kathy Hagen
has to say about advanced medical directives—and
thanks, Kathy, for your help on this important topic. The Access
Press website at www.accesspress.org will
have a downloadable version of a basic advanced medical directive.
If you’re having trouble
filling it out, look at the Minnesota Board on Aging’s web
site for some directions: www.mnaging.org/seniors/assistance/directive.html
Metro Mobility took
a huge budget cut. We have printed some action items on page
1. Do not let this one slide just because you don’t
use Metro Mobility. I’ve been told that many of the legislators
are very apprehensive about this cut; your call or letter could
make the difference.
Lance Hegland reports
on page 12 about the 25th Annual National Veterans Wheelchair
Games that are coming to Minneapolis for the first time ever. The organizers
boast that it’s the largest
annual wheelchair sports event in the world. More than five hundred
athletes will be participating in events from table tennis to electric
wheelchair races. What we need to do is get involved. The promoters
are figuring they will need about 2,500 volunteers. See Lance’s
article to see how you can take part.
Jack Priester explores the Care vs. Empowerment controversy and
outlines the size of the problem. Professor Priester explains some
strategies to narrow the gap between health-care professionals and
health care philosophy and the disability community and the entire
non-health care trained population.
I would like to thank
all of you who sent prayers, good wishes, and positive energy my
way while I was sick. It has all helped in my continuing recovery.
I also really want to thank Terri Ricci and her dedication to the
paper. She worked hard, along with a lot of great contributors,
to put out the last two issues of Access Press, and I’m proud and happy to be back among so many good colleagues.
I’m still hooked up to tubes, but I’m back.
